Our Dear Benjamin

KODAK Digital Still Camera

When this picture was taken recently, we had a suspicion that something might be wrong with you Benjamin. You are coming up on a year old and still not pulling yourself up, crawling or walking. With a recent appointment your doctor referred you to a Pediatric Neurologist at the Children’s Hospital in Spokane for an MRI so we can find out what’s going on… we have a suspicion of cerebral palsy the hypotonic type as you do not have stiff legs, rather they are soft and not doing what they need to be doing.  You kick happily as any boy would, you always pull your sweet legs up to cuddle in against me when I nurse you. I love your legs and love everything about you. That’s why it’s so hard. We had one of the hardest, saddest and most concerning weekends we’ve ever had over any of our children these past few days. I had literal waves of pain overtake me off and on throughout each day since finding out on Friday that there’s an urgency for you to be seen. But somehow you are going to be okay. And when we find out what is going on with you, I have a story to share about something the Lord put on my heart when I was pregnant with you early on.

[vimeo 173079389 w=640 h=360]
<p><a href=”https://vimeo.com/173079389″>102_0292</a> from <a href=”https://vimeo.com/user36589551″>Hadassah Geraci</a> on <a href=”https://vimeo.com”>Vimeo</a>.</p>

Video from 2 weeks ago or so…


8 thoughts on “Our Dear Benjamin

  1. When the video started I remembered that Isaiah was 11 months when I went into the hospital with an abscess on my colon. I had to quit nursing immediately. I was gone 3 1/2 days. I was too ill to pump and there was a huge possibility of losing my entire colon.
    Anyway the memory always seizes my heart.
    Isaiah was fine, my daughter Grace gave him his bottles which I had supplemented with. She was always embarrassed by my nursing. (she was 15) But she told me he missed nursing. I think it won her over :o)

    Benjamin is absolutely adorable! So happy! So loved! I am praying.(((HUG))))

    I have been praying for you all and will add this to my list. I got your e-mail, and I read your last posts in my e-mails. But this month I have been quite ill. I have been fighting an abcess in my jaw. Three teeth had abscessed last year in the back and I dealt with that last year by removing the teeth. Only now to realize it had not all been removed. And it has traveled down my jaw. So that has been my month of June.

    I hope to hear your news about you too! :o)

    • What a heartbreaking time for you back then. I’m sorry to hear about all your troubles now too and during such a critical time with your G boy. Are you able to get your teeth and jaw fixed soon? That type of pain is just debilitating. : ( My blood work has come back fine but I have headaches every day and just some weird symptoms. We need to pray for each other and Susan’s family too… goodness there’s a lot going on with all of us. But, it’ll all be okay. Bless you!

  2. Your Benjamin is one of the most beautiful little boys I have ever seen! I know you are scared, but the Lord is with you! Never will He leave you, nor forsake you! Your son is made for God’s glory & His life will reflect that. I am so sorry for your pain! ((hugs))

    JennyO (MOMYS)

  3. I will keep you in my prayers & check in! I just *KNOW* you are the perfect mama for your little guy! The Lord didn’t look away and say “ooops!” He is sovereign & loving. Trust HIS heart for you & Benjamin.


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