When this picture was taken recently, we had a suspicion that something might be wrong with you Benjamin. You are coming up on a year old and still not pulling yourself up, crawling or walking. With a recent appointment your doctor referred you to a Pediatric Neurologist at the Children’s Hospital in Spokane for an MRI so we can find out what’s going on… we have a suspicion of cerebral palsy the hypotonic type as you do not have stiff legs, rather they are soft and not doing what they need to be doing. You kick happily as any boy would, you always pull your sweet legs up to cuddle in against me when I nurse you. I love your legs and love everything about you. That’s why it’s so hard. We had one of the hardest, saddest and most concerning weekends we’ve ever had over any of our children these past few days. I had literal waves of pain overtake me off and on throughout each day since finding out on Friday that there’s an urgency for you to be seen. But somehow you are going to be okay. And when we find out what is going on with you, I have a story to share about something the Lord put on my heart when I was pregnant with you early on.
[vimeo 173079389 w=640 h=360]
<p><a href=”https://vimeo.com/173079389″>102_0292</a> from <a href=”https://vimeo.com/user36589551″>Hadassah Geraci</a> on <a href=”https://vimeo.com”>Vimeo</a>.</p>
Video from 2 weeks ago or so…
I know what you all were thinking. ; ) You were thinking that my adrenals were shot from having all these crazy kids… ha ha. Well, they are just fine! Good and fine. My ACTH Stimulation test showed that I have healthy adrenal glands.
However, my cortisol levels are still low so they are doing more blood work and looking at other possible causes. I’ll update later if it’s anything significant.
Bear with me while I take more time to post these days. Elisabeth fractured her arm a couple of months ago or so while on the trampoline doing flips (against our rules). She has had a cast put on and already had it removed after 4 weeks. She is doing well.
Benjamin will have to have a procedure done in Spokane to have his tear ducts opened. They will have to put him to sleep for this. We are awaiting an appointment for this. I’ll be taking him as he is still my little “nursling”. : ) I think it’s going to be hard and I’m sure I’ll cry when they have to put him to sleep. He’ll be good as new with no more goopy eyes throughout the day and tears running down his face that continually need to be wiped up.
Hannah has had stomach discomfort for the past year after eating. We took her to many appointments and finally they recommended she have an upper GI done. She had this procedure done in Spokane at the Children’s Hospital that Benjamin will be going to. They saw a couple of tiny red spots and did a biopsy but all turned out fine. She hasn’t complained a bit since returning from having the procedure done a couple of months ago.
Back in 2002 I had bad heart palpitations… skipped beats (ectopic) and palpitations. They did an echo cardio gram and all was well with the structure and mechanics of my heart. They wanted to put me on beta blockers though because the irregularity was pretty bad… hours a day and for a couple of months. I didn’t want to be put on medication so I quit drinking coffee and started going for walks and it never has been a problem until a couple of months ago. This time it was worst so I made an appointment to go in to get some blood work done. I thought it would be good to at least have my thyroid, adrenal levels and such checked. Apparently my cortisol levels are pretty low. They rechecked them and they are still low so I am going in for an appointment where they will give me an injection of an adrenal gland concoction to see if my cortisol levels double. If they don’t, then I have adrenal fatigue and will have to be put on some medication – probably oral hydrocortisone. It’s been very hard to live here and it has cost me some of my health.
The good news is that from what I read, most people can start living pretty normal after starting the medication and they usually only have to be on it for a few months to give the adrenals some rest. I was wondering why I just couldn’t go on my walks anymore. Usually I lose my pregnancy weight over the Summer after the baby is born. I have had trouble walking just to the mailbox where two years ago I could very easily and quickly walk an hour a day…. remember my 48 pound loss in 4 months? I’ve only lost 10 pounds in 3 months because I have no energy to exercise. I really thought it was just the no energy thing because I’m still nursing a baby. Anyways, all should be well soon I suppose. I do have some pictures to post here pretty soon.
My good Nikon camera finally broke after 4 years so we are using a cheap one for now as we are only 2 months, maybe 3 months from paying off our debt and all be if I am going to want to hinder that! : ) I’ve been sewing a bit more lately as I do have the energy to do that. I am wanting to change our clothing more to what has been on my heart for years and that is more of a farmy look. Dresses with aprons, ruffles, femininity, linen and a bit of pretty, classical flower patterns. Since I already sewed up the girl’s dresses for the Summer a few months ago, I guess we’ll have to wait a while before you start seeing some of our change. I’ll share the linen dress and linen apron I am almost finished with soon. I want to replace the girl’s bonnets with pretty, flowered triangle head coverings that have elastic so they stay in place. While we don’t have our dream farm here, it’s still our love and I want our dress to reflect our love for the good things and lovely things that the Lord provides in our daily lives such as gardening. I’ll share pictures of the garden too. It’s much bigger this year. : )
Anyways, I hope everyone is doing well! Sorry for the slow blog posts, I think the low cortisol levels affects my brain, literally. : ) Talk to you all soon!